Search found 60 matches

by Ashlee
Mon Sep 04, 2017 7:35 pm
Forum: IVSM
Topic: Treatment for Acute Relapses in NMO Methylprednisolone (Solu-Medrol)
Replies: 0
Views: 8638

Treatment for Acute Relapses in NMO Methylprednisolone (Solu-Medrol)

Disclaimer: This is how we treat acute relapses at the Johns Hopkins Hospital. There are no worldwide or nationwide standard protocols, but there is a broad consensus on the general approach.  High dose steroids are almost always provided for treatment of an acute relapse. This type of steroid, meth...
by Ashlee
Mon Sep 04, 2017 3:58 pm
Forum: What is NMO
Topic: What's NMO?
Replies: 0
Views: 5717

What's NMO?

Neuromyelitis optica (NMO), previously known as Devic's disease, is a central nervous system disorder that primarily affects the eye nerves (optic neuritis) and the spinal cord (myelitis). Now known in broader terms as neuromyelitis optica spectrum disorder, NMO occurs when your body's immune system...
by Ashlee
Mon Sep 04, 2017 11:55 am
Forum: Vitamins
Topic: Vitamins
Replies: 0
Views: 6343

Vitamins

Most NMO patients are vitamin D and B12 deficient. When taking vitamins always remember NOT to take ones that boost the immune system. You can take ones that support the immune system. But taking a vitamin that boosts the immune defeats the purpose of the preventative medicine. Because the purpose o...
by Ashlee
Mon Sep 04, 2017 10:49 am
Forum: Forum: Pseudo Flares
Topic: What is a Pseudo-relapse in NMO?
Replies: 2
Views: 8722

Re: What is a Pseudo-relapse in NMO?

Thank you. Heather Dawn Sawalla wrote it. I just posted it. Lol
by Ashlee
Sun Sep 03, 2017 10:19 pm
Forum: Forum: Companion and Support Dogs
Topic: Support dogs
Replies: 0
Views: 5150

Support dogs

Do you have a support dog and want to share stories about them or how they help you? Maybe you would like to get one or have questions. This is the spot to chat about it. :)
by Ashlee
Sun Sep 03, 2017 10:11 pm
Forum: Forum: Service and Guide Dogs
Topic: Guide dogs
Replies: 2
Views: 4698

Guide dogs

This is where members can share stories about their guide dogs and ask questions regarding their guides. Maybe your guide is acting out and another member can help you with that or you have questions on how to apply for a guide. This is the spot to chat about that. :)
by Ashlee
Sun Sep 03, 2017 7:44 pm
Forum: Forum: Optic neuritis
Topic: What is Optic Neuritis?
Replies: 1
Views: 5366

What is Optic Neuritis?

Optic neuritis is an inflammation that damages the optic nerve, a bundle of nerve fibers that transmits visual information from your eye to your brain. Pain and temporary vision loss in one eye are common symptoms of optic neuritis. Optic neuritis is linked to multiple sclerosis (MS), a disease that...
by Ashlee
Sun Sep 03, 2017 1:56 pm
Forum: Forum: Pseudo Flares
Topic: What is a Pseudo-relapse in NMO?
Replies: 2
Views: 8722

What is a Pseudo-relapse in NMO?

Attention Members! What is a Pseudo-relapse in NMO? In NMO, the nervous system is damaged, and may never heal the way that it was prior to a relapse. The lesion that is present could always "act up" if there is a disturbance in your body. This is called a pseudo relapse. These pseudo relapses feel l...
by Ashlee
Sat Sep 02, 2017 8:00 pm
Forum: Imuran (Azathioprine)
Topic: What is imuran?
Replies: 0
Views: 6451

What is imuran?

Imuran is used off label to prevent nmo attacks.


Imuran also known as (Azathioprine) is an oral medication used to suppress the immune system and try to prevent future relapses. It's usually dose at 2.5 milligrams per kilogram
by Ashlee
Sat Sep 02, 2017 6:48 pm
Forum: Forum: Share your Story
Topic: Ashlee's NMO story
Replies: 2
Views: 5267

Ashlee's NMO story

My name is Ashlee. Thank you for taking the time to read my story. I’m not really sure where to begin and I’ve never publicly shared my NMO story before but, here it goes… In 2004, about six weeks after giving birth to my son, I developed my first symptom. One morning, I woke up and couldn’t see out...

Go to advanced search